Parents of children affected by Phelan-McDermid syndrome (PMS) announce the formation of CureSHANK, a nonprofit organization on a mission to accelerate drug development in PMS and other diseases related to the SHANK genes for which there are currently no FDA approved treatments.
from
https://healthnews010.tumblr.com/post/188558863033
from https://johnher1.blogspot.com/2019/10/new-npo-formed-to-accelerate.html
from
https://johnher10.tumblr.com/post/188558986772
From https://stevenbrown1.blogspot.com/2019/10/new-npo-formed-to-accelerate.html
from
https://stevenbrown11.wordpress.com/2019/10/24/new-npo-formed-to-accelerate-development-of-therapies-for-shankopathies/
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